Tag Archives: Illness Narrative

Rethinking a MMT of Cancer Survival

Today I came across the following on one of my favorite sites, makesmethink.com (MMT):

“Today, on my mom’s side of the family, the majority of the women have had breast cancer – many of them multiple times. But none of them have died from it. The amazing beauty and strength of the women in my family MMT.”   -Sandy

Instinctively, I can’t help but scrunch my eyebrows at this one. While I agree that it is a truly wonderful thing for Sandy’s family to have been blessed by survival, I think that the construction of her idea gives off the wrong idea and falls victim to the temptations of the triumph narrative.

Sandy draws a direct link between the survival of these women, their external appearance, and their inner strength. She paints the image of a group of attractive women whose strength allowed them to beat the odds and conquer cancer. She claims that it is these characteristics of these individuals that “makes me think.” My question is, what is the correlation between these characteristics and their successful evasion of death?

This also seems to undermine the experience of all the women who don’t survive breast cancer; does this mean that those who don’t survive did not have enough will to live?

It’s quite possible that I am entirely overthinking this, but I think that this exemplifies the importance of language as an expression of our understandings of illness. While language can be incredibly empowering, there are times when it can have subtle implications unbeknownst to us.

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Filed under Literary Narratives, Miscellaneous Musings

The Closing of the Bell Jar

While the first half of The Bell Jar introduces the reader to the character of Esther and the world she inhabits, the second half truly allows the reader to witness firsthand how Esther’s mind unravels as depression takes its toll on her. Esther meets Dr. Gordon, who insists on administering shock therapy when talking results in no improvements. The experience of shock therapy feels like slumber when done correctly, but Esther’s consciousness during parts of the shock therapy leaves her traumatized despite her external appearance of recovery.

Life goes on, but Esther’s depression lingers as she is consumed by suicidal thoughts. She contemplates and half-plans a variety of attempts: cutting herself in the bathtub with a razor blade, drowning in the depths of the sea, hanging herself with her mother’s bathrobe drawstring. She becomes aware of her body’s physiological desire to live, and its resistance to her suicide attempts. Finally, she finds her answer in her mother’s sleeping pills, and she overdoses within the comfortable confines of the cellar.

Miraculously, her groans give away her hiding spot and Esther’s mother finds her. She is initially admitted to the state hospital, but her sponsor Philomena Guinea has her transferred to a better private hospital. While taking insulin injections, Esther spends time with Valerie and Miss Norris before Joan, the girl that Buddy once took to a school dance, is admitted as well. She establishes a good relationship with Dr. Nolan, and gets moved up to Belsize with Joan, the final step before she reenters the real world. Although Dr. Nolan had initially assured her that she would not have to receive any more shock treatment, Dr. Nolan stands by Esther’s side and makes sure that it is done properly.

As winter semester draws nearer, Esther seems to be doing better. She gets fitted for birth control and loses her virginity to a professor named Irwin, but she feels pain rather than pleasure and bleeds tremendously. Joan helps her to the hospital, but this emergency seems to traumatize Joan for she hangs herself just a few days after. The novel draws abruptly to a close, just as Esther enters into a room full of doctors to demonstrate her readiness for restitution.

Although I knew that this was a book about mental illness, the intensity of Plath’s writing and the pain of experiencing Esther’s suicidal thoughts took me aback. My experiences of reading the novel in many ways seemed to parallel Esther’s experiences of coping with mental illness as embodied by the metaphor of the bell jar. There were times, particularly as she described her elaborate suicide schemes, where I felt as though a bell jar was enclosing around me. I was overwhelmed by the naked honesty and bold vulnerability of Esther (or Plath, if interpreted autobiographically) as she exposed her mind in such an unhindered way. Interspersed amongst these painful passages of depression were moments when Esther was doing better, and it was at these times that her personality shined through, other aspects of her character came to life, and I could feel the bell jar lift from around me. This speaks to Plath’s incredible success at capturing her experiences and illuminating mental illness by carefully crafting language.

Discussion Questions:

  1. How does Esther’s depression manifest itself in the writing style of the second half of the novel?
  2. What is the role of supporting characters, particularly other psychiatric patients, in exposing the psychiatric ward? How do these interactions influence Esther?
  3. How does viewing the novel through an autobiographical lens illuminate certain aspects of the plot and the language and eclipse others? An illness narrative lens?

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Filed under Independent Study, Literary Narratives

Entering the Mind of Esther: Plath’s The Bell Jar

In Sylvia Plath’s The Bell Jar, the reader enters into the mind of Esther Greenwood, an Honors English student who works in fashion and an aspiring poet studying in New York. Living in the Amazon hotel with other college girls, she has many adventures from going out with Doreen to getting food poisoning from a food tasting event. Esther is a hard worker who has no dreams of getting married, and she enjoys going out on dates and meeting men with unique names.

We learn about Buddy Wilkins, the man who was once her love interest; now that he loves her in return, she has unearthed his flaws of hypocrisy and is no longer interested. Their relationship grows as Buddy introduces her to the life of a medical student and she exposes him to the world of poetry. He admits to her that he has known one other woman, and this knowledge makes Esther feel inexperienced and uncomfortable with his innocent façade. Illness brings their accelerating relationship to a halt: Buddy has TB and is sent to a clinic in the mountains.

When Esther accompanies his father to go visit him, Buddy proposes to her. Esther denies him, claiming that marriage is not her plan and using her neuroticism as a scapegoat. Buddy, however, insists persistently in being with her, and the conversation lingers. He takes her skiing for the first time and she breaks her leg.

Time jumps forward, and Esther is heading home for the summer, eagerly awaiting her acceptance into a summer writing program at Boston. She had been confident and expectant about the course, and the news that she has been rejected is earth shattering to her. She is trapped at home, and she struggles to escape the tragedies of her situation by fantasizing about the future. Things take their toll on her, and her inability to sleep or read leads her to the family doctor; she refers Esther to a psychiatrist.

Discussion Questions:

1.     How does the disjointed dimension of time illuminate the narrator, Esther?

2.     Through the juxtaposition of Esther’s passion for poetry and Buddy’s interest in medicine, what does Plath reveal about the intersection of these fields?

3.     How do metaphors and similes function in this narrative? How do they enhance or complicate the reader’s understanding?

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Filed under Independent Study, Literary Narratives

Insectifying Illness in Kafka’s The Metamorphosis

In Franz Kafka’s The Metamorphosis, Gregor wakes up to find that his “anxious dreams” are in fact reality: he has been changed into a “monstrous verminous bug” (1). Late for work, he struggles to free himself from the confines of his bed but is unable to escape. His family begins to knock anxiously on his door, and his manager scolds him angrily for his tardiness. Gregor tries to respond in self-defense, but he can no longer speak in words and is not understood by the others. With great effort, Gregor makes his way to the door; at the sight of Gregor, the manager departs hurriedly and the family stands aghast.

Gregor’s ill state has been established, and he is kept in his room. His sister feeds him and takes care of him eagerly at first, keeping his room clear so he can crawl around. His father seems to stay strong in denial while his sensitive mother pines. Gregor hides from his family by situating himself under the couch and shielded by a sheet. On one occasion, Gregor’s mother faints at the sight of her son and Gregor’s father lashes out at him, throwing apples that result in an immobile state of injury for Gregor.

Since Gregor had been the primary breadwinner for the family, each family member is forced to step up and take on new responsibilities for pay. The family takes on three tenants to help pay for rent. When they see Gregor, they immediately decide against the lease, disgusted by the familr. For the Samsa family, this is the last straw. Gregor is no longer a “he” but an “it” instead, which allows them to forfeit their claim and responsibility for him. That night, Gregor dies. Gregor’s death frees the Samsa’s, for their lives no longer need revolve around him, and they are able to return to a state of normalcy.

I have always found Kafka’s works to be incredibly compelling, and this one certainly did not disappoint me. One of the things that I found to be most fascinating was the role of the 3rd person omniscient narrator. Although the story seemed to be told through the eyes of Gregor, the narrator was not inside his head but rather an objective observer. I felt that the narrator’s intimacy with Gregor was transformed just as Gregor’s own transformation evolved throughout the novella. As Gregor’s insect identity became more and more consuming, the narrator joined the Samsa family in distancing himself from Gregor. If anything, this shows just how isolating Gregor’s insectification really was- even the narrator who is telling his story abandons him.

Discussion Questions:

1. What parts of the text can be identified as representative of a chaos narrative? A quest narrative? A restitution narrative?

2. What words does Kafka use to allude to Gregor’s insect-like state?

3. What is the effect of the 3rd person narrator? How does the narrator’s stance evolve throughout the novella?

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Filed under Independent Study, Literary Narratives

Narrating Illness through Dance

This week, I’m on the look out for non-narrative illness narratives. Expressions of the illness experience that occupy any form of media.

I’m beginning my exploration of multimedia illness narratives with dance. As someone who has danced forever, I have always been fascinated by movement. Recently I have learned about dance therapy and movement programs, and I love how dance and movement have been adapted to help with coping.

I began with a youtube search for ‘illness dances’.

This first video is called Schizophrenia, and is “loosely based” on the illness.

These movements embody the marriage of chaos and calm, of sharp and fluid, of control and collapse.

Another video I found is called “An Interpretation of My Illness- Crohn’s disease.” Unlike the previous one, this dance is choreographed by an individual who has the illness that the dance expresses.

Her incorporation of movements on the floor demonstrate the “falling” aspects of her illness, the numerous head rolls reveal her anguish. An interesting aspect of this dance is the song chosen: “Her Diamonds” by Rob Thomas, a song written for his wife who has an auto-immune diseases.

Last but not least, how can I forget my own dance loosely choreographed about autism? After seeing this video, I was inspired to choreograph a dance last year to “Fix You” by Coldplay.

It’s interesting to look back on my own choreography through the lens of illness narratives. I didn’t even realize that I was depicting the light of triumph narratives. At the time, I described the circle as a moment of “chaos,”; now it seems like those movements express the “chaos narrative” that words cannot capture.

Haven’t had enough dance illness narratives? Here’s an epic production of “Childhood Illness…Our Story”, Part 1 and Part 2, telling the tale of “a mother and young daughter’s journey through chemotherapy.”

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Filed under Dance, Independent Study