Category Archives: Theatre

How is illness performed?

New Models for Embodying Disability

Yesterday was International Day of Persons with Disability. In Zurich, the disability organization Pro Infirmis celebrated with mannequins sculpted after people with disability. “Because who is perfect?”

A simple, compelling work of art. This film and the project it reenacts both encourage us to remember disability. To pause. To reconsider societal ideas about the normal and abnormal body. To respect the vast array of differences that make us human.

What most fascinated me were the responses of passersby. Most halted in their tracks and did a double take. Some seemed confused and uncertain about whether what they were seeing was real. Perhaps these reactions exemplify how much farther we have to go in raising awareness and appreciation for disability.

Integrating disability into how we represent and mold our bodies is one more step forward.

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Filed under Film, Miscellaneous Musings, Theatre, Visualizing Illness

‘Brave’ Pediatric Oncology Patients at UMinnessota’s Amplatz Children’s Hospital

“Say what you wanna say
And let the words fall out
Honestly I wanna see you be brave”

The lyrics of Sara Bareilles’ song Brave struck me. They reminded me of the purpose behind my research and my Honors English thesis: to give children and adolescents a chance to tell their own stories. And, to give all those involved the opportunity to listen, to better understand how these children and adolescents cope with the complex, mysterious illness of cancer. In my mind, the bravery arises in how children are talking and writing about their intimate experiences with cancer.

From Stronger to Roar and now Brave, my emotions are mixed about these charged music videos about the sphere of pediatric oncology. While the Stronger and Roar videos ask for donations to support childhood cancer research in the caption, this video of Brave only links to additional information about the programs offered. I wonder, how does the purpose behind these videos affect how we should respond to them?

I have to say, one of the best things about these music videos is that they counter common misconceptions about childhood cancer. Every time I tell someone that I want to be a pediatric oncologist, people stare at me and say, “Oh. That’s so depressing” or “That’s so sad!”. I’m not saying that it’s not going to be an emotionally challenging career, but at the same time, these are truly incredible and lively children. These videos portray the fun and joy  that is also part of pediatric oncology. These children embrace their passions and make the most of their time in hospitals by playing games, making crafts, and finding reasons to laugh.

That’s why these videos make me smile.

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Filed under Chronicling Childhood Cancer: Illuminating the Illness Experience through Narrative, Dance, Film, Theatre

My Other Voice: Giving Voice to Young Adult Cancer

On the brink of graduation and a Broadway career, cancer threatened to take Alex Kip’s voice and his life. Two years later, Kip has held on to both, and he is sharing his story through theatre.

My Other Voice is a play written by Kip about his personal experiences as a young adult with cancer, starring Kip himself. Upon diagnosis, his mind was set on recovering in time for the “silly” senior showcase that doctors didn’t understand. When Dr. Foster asks Kip’s mom to break it to him that he would not be able to participate, this responsibility lingers; when it finally reaches Kip, he becomes distraught and untrusting. Interactions with the medical realm conveyed an arousing critique, calling for greater sensitivity in medicine. For respecting what patients value most in their lives and appreciating these needs whenever possible.

Kip experiences the destruction and recreation of identity as he loses his singing voice and finds a new one. As a patient, he loses independence and his sense of control as he is forbidden to work out. Cancer’s disruptive nature into Kip’s life as well as those around him is brought to life by the realness of each character. Each person responds to Kip’s cancer differently, physically and emotionally. Their actions and coping mechanisms vary, and getting to know these nuanced personalities and witness their transformations was a resounding effect of the play. The personal nature of illness as it permeates into lives is performed.

With the intimacy of the thrust stage, the audience is immersed in the performance. With young adult dialect, iMessages, and popular rap music, we enter into the college life. We even follow Kip and his friends as they get high off magic brownies infused with marijuana. Amidst the devastation of cancer, Kip finds friendship in a fellow cancer patient. Amy redefines what it means to have cancer, explaining that “You’re a survivor the day you start fighting.” While she herself does not survive in the traditional sense, her voice remains influential to Kip. Amy’s death illuminates the emotional depth to cancer, the disease reasserting itself as a threat to vitality.

Following the performance was a talk-back session led by Dr. Ora Pescovitz, the CEO of the U of M Health System. Through an interactive conversation with performers and audience members, some of the ideas introduced by the play were given voice. The discussion revolved around the controversy of medical marijuana, critiques about the medical profession, and value for artistic therapies in patient care.  I asked Kip a question of my own:

How did the experience of retroactively narrating through play differ from writing a Caring Bridge blog throughout treatment?

Kip noted how the therapeutic process of writing began to substitute for his lost voice. He explained that in adapting his story to play form, he referred to his Caring Bridge posts and some of his private journal entries. These helped him to reconsider the disturbing, to remember the forgotten. “When I was sitting in the hospital I realized that I could use my gifts to make a different in the fight against “cancer” (UM Cancer Center interview with Kip).

Kip demonstrates how everyone can play a role in the illnesses experience. The play may conclude with Kip singing alongside his loved ones, but his revitalized voice continues to resound.

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Filed under Chronicling Childhood Cancer: Illuminating the Illness Experience through Narrative, Theatre, Voice

Empathy: The Human Connection to Patient Care

empathy, n. “the power of projecting one’s personality into (and so fully comprehending) the object of contemplation” (OED).

It’s the parenthetical part of this definition that makes me pause. Is full comprehension achieved through empathy?

This video has been circulating the globe, resonating with a variety of different audiences. I struggle to write about how powerful it has been for me. It’s  fascinating to me how the meaning behind words escapes definition. And perhaps that is mirrored in how videography can bring to life the comparative flatness of literature.

This clip compels viewers to rethink how we share environments with other people, particularly in the unique and vulnerable hospital sphere. Here, illness is the invisible string that brings everyone together in time and space. Medicine, at its core, revolves around the narratives of the ill.

The study of these narratives has been closely intertwined with building a sense of empathy. Today, I am excited and nervous to embark on my own research journey towards achieving the unachievable.

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Filed under Film, Theatre

The Power of W;t

“Hi. How are you feeling today?”

It’s a question often asked, from within and outside the medical sphere, whose answer is rarely sought. Margaret Edson’s play W;t acts out the life of Vivian Bearing, a 50-year-old English Professor who enters into this space with Stage IV Ovarian Cancer. Vivian tells the story of her last few months in the face of death. She reflects on significant moments of her life thus far, remembering her development as an English scholar and teacher. Simultaneously, she observes her new surroundings in medicine, sharply but calmly noting the inadequacies in her care. As alluded to from the beginning of the play, the curtain closes with Vivian’s death.

Edson’s text is clever and precise, and the play comes to life when peopled in the movie. The intertextuality of John Donne’s Holy Sonnets and medical terminology was skillfully done. Edson draws a resonating parallelism between Vivian’s life as a scholar/professor and Jason’s life as a researcher/doctor, both who have strived for academic success at the expense of a simple sense of humanity.

Within her 8 cycles of chemotherapy that the doctors monitor to keep track of time, Vivian instead constructs a timeline based on the accumulation of losses. The vomiting side effects of chemo lead her to realize that “You may remark that my vocabulary has taken a turn for the Anglo-Saxon” (32). When she is trapped under isolation precautions, she recognizes the paradox: “I am not in isolation because I have cancer…No, I am in isolation  because I am being treated for cancer” (47). As her condition worsens, Vivian becomes aware of her inevitable fate and the true purposes of her involvement in research.  She feels objectified, having become “just the specimen jar, just the dust jacket, just the white piece of paper that bears the little black marks” (53). Her identity as a scholar, which she reiterates proudly throughout the play, disintegrates along with the fast-growing cells that are killed by chemotherapy: “I’m a scholar. Or I was when I had shoes, when I had eyebrows” (68).

Perhaps my favorite textual moments were the simultaneous dialogues, located side-by-side on the page. These surprised me, and I was unsure how to read them because it was impossible to read and follow both at the same time.While the movie did not create these scenes as I had imagined them, it created a sense of coherence between scenes. Vivian’s memories were integrated into the present, as she would enter into her past wearing nothing but a hospital gown and then bring her past encounters straight into her hospital room. This maintained the dynamic nature of these memories as not merely remembered but relived in the now. 

Although I often imagine what I read, nothing could have prepared me for what it felt like to have Vivian look straight at me from behind the screen in the movie version. She held a hard, steady gaze with the camera, and these close up shots of her face highlighted her humanity and the harsh effects of cancer treatment. And the sounds- Vivian’s emotional breakdown as she nears her end is hard to enact mentally without the sounds of her crying, her fear, her pain.

While the movie seemed to be pretty true to the script, I was surprised by how differently the movie ended as compared to the play. Both end pretty compelling with a young doctor’s mistake, but the movie leaves Vivian trapped inside her hospital bed. In the play, Vivian is able to step out of her bed and embark towards the light. She attains a sense of liberation from 8 months of chemotherapy bondage, slowly shedding the material elements of her identity as a cancer patient. Her cap. Her hospital ID bracelet. Her hospital gowns. The play allows her to die powerful, while the movie strips her of that opportunity.

Cancer has successfully taught her to suffer. Her entire life’s work loses its worth as she recognizes “Now is not the time for verbal swordplay, for unlikely flights of imagination and wildly shifting perspectives, for metaphysical conceit, for wit.. now is a time for simplicity. Now is a time for, dare I say it, kindness” (69).

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Filed under Film, Literary Narratives, Theatre, Voice