Category Archives: Film

How does film capture illness?

‘Wavin’ Flag’ at UNC Children’s Hospital

“When I get older, I will be stronger…”

Here’s another great video created by the Department of Pediatrics Hematology/Oncology at the University of North Carolina Children’s Hospital. This video doesn’t seem to be soliciting donations for research or marketing its programs; instead, it is merely “honoring and celebrating” these children and families affected by childhood cancer.

What I love about this video is its informality. While parts of it seem skillfully designed and planned, other moments are simple scenes from that the family retreat, which acknowledges that childhood cancer is an experience that permeates into the lives of loved ones as well. 

http://www.youtube.com/watch?v=DOd-6d4hvM8

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Filed under Chronicling Childhood Cancer: Illuminating the Illness Experience through Narrative, Film

How to “Make-A-Wish”: Stephen’s Day as a Michigan Football Recruit

When people think about the Make-A-Wish Foundation, most people think about dying children fulfilling their last wish to go to Disneyworld. But Make-A-Wish Foundation is about so, so much more.

As a volunteer wish granter for the Make-A-Wish Foundation, I’ve had the opportunity to learn more about the organization from the inside and to understand what really goes into turning a child’s wish into reality. I firmly believe that I have the best job of all- it is my responsibility to spend time with children with life-threatening conditions and help them to realize their “one, true wish.” These wishes are about more than visiting Disneyworld but rather understanding what will bring each child the greatest joy they could ever imagine.

This past week, I was inspired to hear about an incredible wish that was close to home for me: Stephen’s wish to be recruited for the University of Michigan Football Team. Like many children, he lost his ability to play football when he was diagnosed with cancer. For his wish, Stephen got to meet his favorite football player, Michigan’s football coach, and even the football team in the Big House.

The only way to appreciate the great work of the Make-A-Wish Foundation is to witness his wish for yourself:

http://frontrow.espn.go.com/2014/07/wish/

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Filed under Chronicling Childhood Cancer: Illuminating the Illness Experience through Narrative, Film, Miscellaneous Musings

The Fault in Our Stars: Fictionalizing the Realities of Childhood Cancer

“This is not so much an author’s note as an author’s reminder of what was printed in small type a few pages ago: This book is a work of fiction. I made it up.”

-John Green, The Fault in Our Stars

The author’s note quoted above is one of my favorite pages in John Green’s The Fault in Our Stars.

When I first heard about The Fault in Our Stars, a book about childhood cancer that was also soon-to-be a movie, my initial reactions were as follows. Surprise, that the often hidden world of childhood cancer was being so prominently featured in a bestseller. Wariness, that this book which was quickly becoming a sensation itself would similarly sensationalize the lives of those with childhood cancer.

Reading the Author’s Note both confirmed and calmed my fears. I applauded Green’s straightforward commitment to the fictionality of the novel, for it cautions the reader not to use this story to make assumptions about childhood cancer. At the same time, it made me curious about his choice to use cancer as an intriguing literary device and how he would portray this reality, however fictionalized.

I found myself scrutinizing this book, expecting it to portray cancer in some false light that would spur further misunderstandings and stereotypes. But I have to say, after reading TFIOS, I was impressed by the power of Green’s language. The adolescent perspective, at times cynical and abrasively honest, allows him to successfully make real this foreign world of cancer. From the “Cancer Perks” that accompany a diagnosis to illness-catalyzed Encouragements, I thought that the story was overall written with great precision.

Interestingly enough, this was one of the first times where I preferred the movie adaptation to the book. To me, the witty dialogue and the comic relief interspersed amongst heartfelt emotion really came to life through the camera in a way that I didn’t quite feel when reading the book. While the book sometimes felt a bit bogged down by philosophical contemplations and at other times almost too simple, the film adaptation struck a balance between both the unbearable lightness and heaviness of being (a phrase I’m borrowing from Milan Kundera’s book)

Some critics have looked down upon this work as yet another in a new genre of “sick-lit” full of terminal illness and the devastations caused by disease. This idea warrants an entire post of its own (coming soon). I am glad that the TFIOS sensation is raising awareness of childhood cancer, but I can only hope that people take Green’s Author’s Note to heart.

“Neither novels nor their readers benefit from attempts to divine whether any facts hide inside a story. Such efforts attach the very idea that made-up stories can matter, which is sort of the foundational assumption of our species.”

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Filed under Chronicling Childhood Cancer: Illuminating the Illness Experience through Narrative, Film, Literary Narratives

New Models for Embodying Disability

Yesterday was International Day of Persons with Disability. In Zurich, the disability organization Pro Infirmis celebrated with mannequins sculpted after people with disability. “Because who is perfect?”

A simple, compelling work of art. This film and the project it reenacts both encourage us to remember disability. To pause. To reconsider societal ideas about the normal and abnormal body. To respect the vast array of differences that make us human.

What most fascinated me were the responses of passersby. Most halted in their tracks and did a double take. Some seemed confused and uncertain about whether what they were seeing was real. Perhaps these reactions exemplify how much farther we have to go in raising awareness and appreciation for disability.

Integrating disability into how we represent and mold our bodies is one more step forward.

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Filed under Film, Miscellaneous Musings, Theatre, Visualizing Illness

‘Brave’ Pediatric Oncology Patients at UMinnessota’s Amplatz Children’s Hospital

“Say what you wanna say
And let the words fall out
Honestly I wanna see you be brave”

The lyrics of Sara Bareilles’ song Brave struck me. They reminded me of the purpose behind my research and my Honors English thesis: to give children and adolescents a chance to tell their own stories. And, to give all those involved the opportunity to listen, to better understand how these children and adolescents cope with the complex, mysterious illness of cancer. In my mind, the bravery arises in how children are talking and writing about their intimate experiences with cancer.

From Stronger to Roar and now Brave, my emotions are mixed about these charged music videos about the sphere of pediatric oncology. While the Stronger and Roar videos ask for donations to support childhood cancer research in the caption, this video of Brave only links to additional information about the programs offered. I wonder, how does the purpose behind these videos affect how we should respond to them?

I have to say, one of the best things about these music videos is that they counter common misconceptions about childhood cancer. Every time I tell someone that I want to be a pediatric oncologist, people stare at me and say, “Oh. That’s so depressing” or “That’s so sad!”. I’m not saying that it’s not going to be an emotionally challenging career, but at the same time, these are truly incredible and lively children. These videos portray the fun and joy  that is also part of pediatric oncology. These children embrace their passions and make the most of their time in hospitals by playing games, making crafts, and finding reasons to laugh.

That’s why these videos make me smile.

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Filed under Chronicling Childhood Cancer: Illuminating the Illness Experience through Narrative, Dance, Film, Theatre

one year/one minute: A Timelapse through Chemotherapy

1 photo per week. 52 weeks in a year. 1 years worth of photos, all in 1 minute.

A powerful series of snapshots that invite us to witness the transformations of chemotherapy.

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A Childhood Cancer take on Katy Perry’s Roar

Similar to Seattle Children’s Hospital’s performance of Stronger by pediatric oncology patients and staff, the Children’s Hospital at Dartmouth-Hitchcock did their own rendition of Katy Perry’s song Roar. This powerful video unites pediatric oncology patients, their families, and the healthcare professionals that treat them come together to sing how “you’re going to hear me roar.”

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Filed under Chronicling Childhood Cancer: Illuminating the Illness Experience through Narrative, Film, Uncategorized, Voice

Empathy: The Human Connection to Patient Care

empathy, n. “the power of projecting one’s personality into (and so fully comprehending) the object of contemplation” (OED).

It’s the parenthetical part of this definition that makes me pause. Is full comprehension achieved through empathy?

This video has been circulating the globe, resonating with a variety of different audiences. I struggle to write about how powerful it has been for me. It’s  fascinating to me how the meaning behind words escapes definition. And perhaps that is mirrored in how videography can bring to life the comparative flatness of literature.

This clip compels viewers to rethink how we share environments with other people, particularly in the unique and vulnerable hospital sphere. Here, illness is the invisible string that brings everyone together in time and space. Medicine, at its core, revolves around the narratives of the ill.

The study of these narratives has been closely intertwined with building a sense of empathy. Today, I am excited and nervous to embark on my own research journey towards achieving the unachievable.

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The Power of W;t

“Hi. How are you feeling today?”

It’s a question often asked, from within and outside the medical sphere, whose answer is rarely sought. Margaret Edson’s play W;t acts out the life of Vivian Bearing, a 50-year-old English Professor who enters into this space with Stage IV Ovarian Cancer. Vivian tells the story of her last few months in the face of death. She reflects on significant moments of her life thus far, remembering her development as an English scholar and teacher. Simultaneously, she observes her new surroundings in medicine, sharply but calmly noting the inadequacies in her care. As alluded to from the beginning of the play, the curtain closes with Vivian’s death.

Edson’s text is clever and precise, and the play comes to life when peopled in the movie. The intertextuality of John Donne’s Holy Sonnets and medical terminology was skillfully done. Edson draws a resonating parallelism between Vivian’s life as a scholar/professor and Jason’s life as a researcher/doctor, both who have strived for academic success at the expense of a simple sense of humanity.

Within her 8 cycles of chemotherapy that the doctors monitor to keep track of time, Vivian instead constructs a timeline based on the accumulation of losses. The vomiting side effects of chemo lead her to realize that “You may remark that my vocabulary has taken a turn for the Anglo-Saxon” (32). When she is trapped under isolation precautions, she recognizes the paradox: “I am not in isolation because I have cancer…No, I am in isolation  because I am being treated for cancer” (47). As her condition worsens, Vivian becomes aware of her inevitable fate and the true purposes of her involvement in research.  She feels objectified, having become “just the specimen jar, just the dust jacket, just the white piece of paper that bears the little black marks” (53). Her identity as a scholar, which she reiterates proudly throughout the play, disintegrates along with the fast-growing cells that are killed by chemotherapy: “I’m a scholar. Or I was when I had shoes, when I had eyebrows” (68).

Perhaps my favorite textual moments were the simultaneous dialogues, located side-by-side on the page. These surprised me, and I was unsure how to read them because it was impossible to read and follow both at the same time.While the movie did not create these scenes as I had imagined them, it created a sense of coherence between scenes. Vivian’s memories were integrated into the present, as she would enter into her past wearing nothing but a hospital gown and then bring her past encounters straight into her hospital room. This maintained the dynamic nature of these memories as not merely remembered but relived in the now. 

Although I often imagine what I read, nothing could have prepared me for what it felt like to have Vivian look straight at me from behind the screen in the movie version. She held a hard, steady gaze with the camera, and these close up shots of her face highlighted her humanity and the harsh effects of cancer treatment. And the sounds- Vivian’s emotional breakdown as she nears her end is hard to enact mentally without the sounds of her crying, her fear, her pain.

While the movie seemed to be pretty true to the script, I was surprised by how differently the movie ended as compared to the play. Both end pretty compelling with a young doctor’s mistake, but the movie leaves Vivian trapped inside her hospital bed. In the play, Vivian is able to step out of her bed and embark towards the light. She attains a sense of liberation from 8 months of chemotherapy bondage, slowly shedding the material elements of her identity as a cancer patient. Her cap. Her hospital ID bracelet. Her hospital gowns. The play allows her to die powerful, while the movie strips her of that opportunity.

Cancer has successfully taught her to suffer. Her entire life’s work loses its worth as she recognizes “Now is not the time for verbal swordplay, for unlikely flights of imagination and wildly shifting perspectives, for metaphysical conceit, for wit.. now is a time for simplicity. Now is a time for, dare I say it, kindness” (69).

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In Honor of Zach Sobiech

An incredible kid with an inspirational story about living life in the face of death:

For Zach, “life is really just beautiful moments, one right after the other.”

Faced with the terminal diagnosis of osteosarcoma, he realized that “my closure is being able to get my feelings into these songs.” Zach’s own illness narratives took the form of music.

Zach died this past Monday, “fly[ing] up a little higher.”

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Filed under Chronicling Childhood Cancer: Illuminating the Illness Experience through Narrative, Film, Voice