ICD Connection: Inspiring Illness Narrative Publication

After reading and reviewing  the illness narrative ICD Connection: Living with an Implantable Cardioverter Defibrillator: A Collection of Patient & Family Stories, I feel that I need to explain another facet of this book. This book has also entirely revolutionized my own research.

When I found out that this book had published, I was shocked to see this publication of illness narratives come to fruition right here at the University of Michigan. I couldn’t help but wonder: would it be possible to do the same with the narratives that the pediatric oncology patients create? After all, one of the main motivations for conducting this research was because of the void in published illness narratives by children themselves. So why not fill that void?

That’s when I got in touch with MPublishing and explained to them my research project and why this was important to me. I wanted the children participating in my research to really gain something meaningful from being a part of the study; I wanted them to be proud of their narrative. I hope that children will find fulfillment in sharing their stories with the health professionals that treat them, the loved ones that care for them, and all the other kids with cancer.

MPublishing agreed, and I couldn’t be happier. We’ll have to wait and see how everything turns out, but the plan is to have publishing be a separate opportunity from the research component of my project. While I will study these narratives anonymously, children can choose how much of their identity they would like to disclose in the publication.

At the end of it all, the children will be able to hold this book in their hands, to flip through the pages, and find their own words. They will be able to share their story with the world.

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Filed under Chronicling Childhood Cancer: Illuminating the Illness Experience through Narrative

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