Tag Archives: Breast Cancer

Week 10: Meeting Cancer, The Emperor of All Maladies

*Audre Lorde, The Cancer Journals

*Rachel Pearson, No Acute Distress (pgs 164-204)

What strikes you about cancer narratives in comparison to other illness or disability narratives? Identify what can be problematic about societal narratives of cancer.

After reviewing the final project and the final project proposal due to next week, we began a discussion about cancer narratives. We built on the themes discussed in the weekly posts to reflect on what is unique and different about cancer narratives compared to some of the other narratives we have read this semester, such as disability narratives and other illness narratives. Our conversation touched upon themes of fear, mortality, disability/normalcy, life after cancer, uncertainty/unknown, prognosis. We ponded what stories we tell as a society about cancer and what stories and experiences go left untold. We imagined the implications of how society narrates cancer, and how these narratives might impact people with cancer.

We then explored the medium of graphic medicine, or comic art, to understand cancer narratives through a different lens. In groups of two, we looked at various excerpts from some of the most well-known cancer graphic memoirs such as Marisa Marchetto’s Cancer Vixen, Miriam Engelberg’s Cancer Made Me a Shallower Person, Brian Fies’ Mom’s Cancer. We observed how the addition of imagery in combination with text created a different dimension to these stories and shared different kinds of emotion through the multiple layers that go into comic art.

Last but not least, we experimented with creating our own graphic art to tell a story of cancer- either based on a reading or a personal experience. It was interesting to create through a different lens than writing since writing is a form of expression that our society is far more accustomed to using. Through the art incorporated into graphic medicine, we had the opportunity to experience something different from traditional written narratives.

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Filed under Narrative Medicine and Health Inequity

one year/one minute: A Timelapse through Chemotherapy

1 photo per week. 52 weeks in a year. 1 years worth of photos, all in 1 minute.

A powerful series of snapshots that invite us to witness the transformations of chemotherapy.

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Filed under Film, Visualizing Illness

Beating Breast Cancer: Angelina Jolie’s Mastectomy

Angelina Jolie’s story of a mastectomy has been permeating through media. With a high genetic risk for breast cancer (>85%), Jolie made the conscious decision that she would not let herself fall victim to cancer. She chose to have a double mastectomy, ridding her body of potentially cancerous cells and replacing them with breast implantations.

Her Op-Ed piece in the New York Times is an interesting and well-written piece, and her decision to undertake a preventive mastectomy all the more admirable. But there was one thing that I wish she had explored more: why the need for the breast implantations following the mastectomy?

I ask this because in reading her piece, I was reminded of Audre Lorde’s The Cancer Journals (as I always am when I hear about breast cancer now). Lorde vehemently critiques the prosthetic breast, suggesting that it is a materialization of societal expectations for women rather than a functional physiological necessity.

Although I realize that Lorde’s strong sense of identity set apart her somewhat controversial critique of the prosthetic breast, it has made me question them more. I imagine that Jolie’s identity as an actress demands for her prosthetic breasts, but I wish she had spoken more about this second, equally important decision in her story. This decision becomes buried beneath the mastectomy, almost as though it was not a decision at all but rather an expected follow-up course of action.

In reading her story, I also think it’s interesting to consider the effects of illness on celebrities. As I opened the article, I was taken aback to realize that I actually recognized the name of the author. I wonder how an illness narrative is altered by a person’s identity as a celebrity and how this impacts its resonance with readers.

It seems like it was Jolie’s awareness of this difference that encouraged her to write this piece, to share her battle, to tell her story.

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Filed under Literary Narratives, Miscellaneous Musings

Appreciating the Honesty of Audre Lorde’s The Cancer Journals

After encountering numerous sneak previews of Audre Lorde’s The Cancer Journals in my preliminary readings about illness narratives, I had high expectations. And Lorde certainly did not disappoint. I was incredibly impressed by the true poetic beauty of her writing, the honesty of her exposure, the infallible strength of her will. Her character was moving: her possession of breast cancer and her strong, dedicated commentary about prosthetic breasts, about being a “Black, lesbian, mother, warrior, woman,” about being herself (92).

Through post-mastectomy journal excerpts, Lorde takes the reader along her journey with cancer. She acknowledges the need for language to escape the comfortable but inadequate confinements of silence, claiming that “what is important to me must be spoken, made verbal and shared, even at the risk of having it bruised or misunderstood” (17).

She explores her arrival at the decision to have the mastectomy and the love and support of women who enabled her to endure the procedure and the pain. Lorde resists the prosthetic breast, instead allowing herself to acknowledge the loss of her right breast, to examine its absence, and to accept. She powerfully critiques the prosthetic breast and plastic surgery breast reconstruction, calling attention to greater social flaws in the perceptions and expectations of women as objects of attraction. Lorde boldly makes claims that invite a pause, a reconsideration of the present rather than a blind acceptance of the way things are.

Lorde has been a source of inspiration to many: Blacks, women, lesbians, aspiring writers/poets, cancer warriors, and more. The powerful prose in The Cancer Journals leaves no question as to why this book resonated with so many and still does today. As the first of its kind, the first to take a step back from conventional depictions of illness through the triumph narrative, this book does not shy away from the truth of Lorde’s pain, even if it is alarming and painful to experience as a reader.

Within the eloquence of Lorde’s writing, two repeated phrases stood out to me. Lorde referred to “america” many times (ex. 77). Not “America.” “america.” Each time I did a double take, left with an unsettled feeling as though something wasn’t quite right. There was something extremely jarring about her conscious choice to resist this conventional norm, to be aware of it and to decide against abiding by it. In deflating the capital A, Lorde powerfully disregards the power attributed to America as a nation such that it becomes just another word on the page. The persistence of her power, in many ways shaped by her encounter with cancer, is repeated throughout her journal and her reflections: “once I face death as a life process, what is there possibly left for me to fear? Who can ever really have power over me again? (63). Through The Cancer Jounals, Lorde finds a way “to be of use” (50).

Discussion Questions:

1.      Excerpts from Lorde’s journal of the past are interspersed with her reflections from the future. What are the effects of this on the narrative? Does it distort the narrative?

2.     Why might Lorde consistently disregard the capitalization of America?

3.     How has the breast cancer movement and experience been revolutionized and transformed by Lorde’s book?

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Filed under Independent Study, Literary Narratives